The IDWP aims to promote and conduct educational activities and clinical investigations on all the topics concerning the diagnosis, the prophylaxis and the management of infectious complications following HSCT.
The mission of the IDWP is to share the experience and develop cooperative studies to increase education in the field of diagnosis, prophylaxis and treatment of infectious complications in HSCT patients.
IDWP Members continue their scientific and educational activity in the fields of: bacterial infections, viral infections, fungal infections including pneumocystis jiroveci infections, parasitic infections, vaccinations, protective environment and guidelines from the area of transplant infectious diseases.
IDWP Team
Those wishing to initiate a study on behalf of IDWP are asked to fill in the corresponding document below. For submission or questions, please contact the IDWP Study Coordinator.
Open Surveys
The impact of the new coronavirus SARS-CoV 2 on immunosuppressed patients such as stem cell transplant recipients and CAR-T cell recipients has been significant. However, there is still a lot of missing knowledge. The Infectious Diseases Working Party of the EBMT therefore has collected data since early March 2020. This activity is still ongoing and we believe it is of major importance to continue collecting information especially since new variants are coming with regular intervals and which might have different clinical impact on our patients. It is also clear that reinfections with SARS-CoV-2 are becoming regular events and about such we know very little. We therefore hope you are willing to continue participating in the ongoing prospective survey about the impact of COVID-19 on patients having undergone stem cell or CAR T cell therapy.
The survey is in 4 steps:
- Please fill in the registration form for each patient diagnosed with covid-19 at your center and submit the completed form to the EBMT IDWP Data office.
- After resolution of the episode, we will collect more information regarding the COVID-19 infection and its outcome. Please fill in the follow-up form.
- We will thereafter merge the information with the MED-A form to get the basic patient information. Therefore, please make sure the patient is registered in the EBMT database
- We have also created a specific, shorter form for patients with a reinfection. This is for patients already having been infected with one variant after HCT or CAR T cell therapy and now experience a reinfection most likely with an Omicron variant.
All the forms are available below and are protected with a password: covid_idwp
Contact
For any question about this survey, please email idwp.ebmt@lumc.nl. If you do not wish to participate, please let us know as well.
Per Ljungman
Rafael de la Camara
Nicolaus Kröger
Jan Styczynski
Stephan Mielke
Malgorzata Mikulska
Patients who underwent HSCT, both allogeneic or autologous, between January 1st, 2021 and December 31st, 2022 and developed an infectious (any CTCAE grade) or relevant (CTCAE >1°) non-infectious CNS disorder after HSCT in this period can be included in this study.
Below you can find the registration form for cases. Password to open: cns_idwp
Please send the completed registration form to the IDWP study unit: idwp.ebmt@lumc.nl. If you'd like to receive more information or have any questions, please contact us as well and we will send you all required information to join our study.
