The IDWP aims to promote and conduct educational activities and clinical investigations on all the topics concerning the diagnosis, the prophylaxis and the management of infectious complications following HSCT.
The mission of the IDWP is to share the experience and develop cooperative studies to increase education in the field of diagnosis, prophylaxis and treatment of infectious complications in HSCT patients.
IDWP Members continue their scientific and educational activity in the fields of: bacterial infections, viral infections, fungal infections including pneumocystis jiroveci infections, parasitic infections, vaccinations, protective environment and guidelines from the area of transplant infectious diseases.
IDWP Team
Those wishing to initiate a study on behalf of IDWP are asked to fill in the corresponding document below. For submission or questions, please contact the IDWP Study Coordinator.
Open Surveys
The impact of the new coronavirus SARS-CoV 2 on immunosuppressed patients such as stem cell transplant recipients and CAR-T cell recipients has been significant. However, there is still a lot of missing knowledge. The Infectious Diseases Working Party of the EBMT therefore has collected data since early March 2020. This activity is still ongoing and we believe it is of major importance to continue collecting information. We therefore hope you are willing to continue participating in the ongoing prospective survey about the impact of COVID-19 on patients having undergone stem cell or CAR T cell therapy in the data registration.
The survey is in 3 steps:
- Please fill in the registration form for each patient diagnosed with covid-19 at your center and submit the completed form to the EBMT IDWP Data office.
- After resolution of the episode, we will collect more information regarding the COVID-19 infection and its outcome. Please fill in the follow-up form.
- We will thereafter merge the information with the MED-A form to get the basic patient information. Therefor, please make sure the patient is registered in the EBMT database
Extension of the inclusion
We also want to understand what happens if patients with a recent COVID-19 undergoes either stem cell transplantation or CAR T cell therapy. This is a complementary form to the registration form. If you have such patients, please fill in the form and thereafter also the follow-up form for such patients. If the number of patients exceed the number of slots on the form, please, add a 2nd form.
All the forms are available below and are protected with a password: covid_idwp
Contact
For any question about this survey, please email idwp.ebmt@lumc.nl. If you do not wish to participate, please let us know as well.
Per Ljungman
Rafael de la Camara
Nicolaus Kröger
Jan Styczynski
Stephan Mielke
Malgorzata Mikulska
Patients who underwent HSCT, both allogeneic or autologous, between January 1st, 2021 and December 31st, 2022 and developed an infectious (any CTCAE grade) or relevant (CTCAE >1°) non-infectious CNS disorder after HSCT in this period can be included in this study. If you'd like to receive more information, or if you have an eligible patient, please contact the IDWP data office (email can be found below) and we will send you the registration form and all other required information to join our study.
