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Severe Aplastic Anaemia Working Party (SAAWP)

The SAAWP reports on Aplastic Anaemia (AA) and other rare acquired and inherited bone marrow failure disorders.

The SAAWP provides essential data on outcomes after treatment from large numbers of patients that can only be obtained from large registries like the EBMT. It also provides important clinical information needed to help classify and characterise the disease and data on the natural history of the disease and late effects that occur after treatment.   

The SAAWP holds the Aplastic Anaemia (AA) database that is the only “disease-specific” database within the EBMT. Data are collected not only on patients receiving transplants but also other forms of therapy, including immunosuppressive therapy. 


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The personal data provided will be processed according to the General Data Protection Regulation (GDPR 2016/679 ) and incorporated to a file property of EBMT which will be allocated in the EEA (European Economic Area) or in countries that are provided with the same level of protection for privacy such as countries that adhere to EU-US and Swiss-US Privacy Shield Frameworks.
Data Subjects have the right of access to his or her data and the right to rectification of any inaccurate or incomplete personal data. The Data Subject also has the right to withdraw consent, this wish will be respected, and the personal will no longer be made available. If the processing operation is unlawful the Data Subject has the right to request deletion of that data. Please write to