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Privacy Policy

The EBMT (European Group for Blood and Marrow Transplantation) is committed to user privacy. The EBMT website - http://www.ebmt.org – has been structured so that users can visit it without identifying themselves or revealing any personal information. 

Any personal data that a user may decide to provide us will be used to support the relationship between the EBMT and this user. 

What is personal data? 

Personal data is any information relating to an identified or identifiable natural person ('data subject'); an identifiable natural person is one who can be identified, directly or indirectly, in particular by reference to an identifier such as a name, an identification number, location data, an online identifier or to one or more factors specific to the physical, physiological, genetic, mental, economic, cultural or social identity of that natural person.

How is personal data obtained? 

EBMT collects personal data only if you voluntarily submit it by completing the on-line forms. When you choose to submit personally identifiable information to EBMT, the latter will use your information only for the purposes for which you have consented. The purpose for processing the personal data is detailed in the on-line form or application form.

How is personal data processed? 

The EBMT ensures that all personal data under its responsibility is processed according to the General Data Protection Regulation (GDPR 2016/679)

  • Processed lawfully, fairly and in a transparent manner in relation to the data subject;
  • Collected for legitimate purposes;
  • Processed adequately, relevantly and not excessively in relation to the purposes for which they are collected and/or further processed;
  • Accurate and up to date;
  • Kept in a form which permits identification of data subjects for no longer than is necessary for the purposes for which the personal data are processed.
  • Processed in a manner that ensures appropriate security of the personal data through technical and organisation measures.

Personal Data Transfers

EBMT will not sell, distribute or lease your personal information to third parties unless we have your permission or are required by law to do so.  

The EBMT works with many “Collaboration Partners” internationally including national registries, national health authorities, researchers from scientific/clinical institutions and the marketing authorisation holders (MAHs; Pharmaceutical companies owning the therapies that your patients may receive for their treatment) for clinical research purposes and the development of new and improved transplant, cell therapy and immunosuppression procedures, and to improve the quality of these procedures.

For the purposes described above and in order to comply with the legal obligations and requirements for the development of clinical research studies, your data might be shared with MAH and national health authorities in the context of a study that your institution is being part of.

Where is the Personal Data Stored?

Personal data is stored in an electronic database property of EBMT which will be allocated in the EEA (European Economic Area) or in countries that are provided with the same level of protection for privacy.

What are my rights as the Data Subject?  

The Data Subject has the right to the following information about personal data being processed:  

  • Confirmation as to whether data related to him or her are being processed;
  • Information about the purposes of the processing operations, the categories of data concerned, and the recipients or categories of recipients to whom the data are disclosed;
  • Communication of the data undergoing processing. 
  • Knowledge of the logic involved in any decision process concerning the use of the data subject’s personal data. 

The Data Subject shall have the rights listed below:

  • Access to information on his or her processed personal data.
  • Rectification of any inaccurate or incomplete personal data. 
  • Withdraw consent and the personal data will no longer be processed.
  • Request that his or her personal data be completely erased from the EBMT database and from databases to which the data has been exported. 

If as a Data Subject you wish to exercise any of the rights listed above. Please send an email to data.protection@ebmt.org or use the postal address below. 

The Data Protection Officer 
Edifici Dr. Frederic Duran i Jordà 
Passeig Taulat, 116
08005 Barcelona (Spain)​

The Data Subject also has the right to lodge a complaint with a supervisory authority.

Comments or questions 

If you have any comments or questions about this privacy policy, please send them to data.protection@ebmt.org

The Data Protection Officer 
Edifici Dr. Frederic Duran i Jordà 
Passeig Taulat, 116
08005 Barcelona (Spain)​

We collect Web Statistics 

As you browse through this Web site, the EBMT collects some non-personally identifiable data, such as: 

  • The type of browser used to access the site
  • The date and time of your visit
  • The pages you visited
  • The address of the Web site that referred you if you clicked a link to get to this site 

The EBMT collects this information for statistical purposes and for evaluating this Web site to make it more useful to visitors. 

A cookie is a small file which asks permission to be placed on your computer’s hard drive. Once you agree, the file is added and the cookie helps analyse web traffic or lets you know when you visit a particular site. Cookies allow web applications to respond to you as an individual. The web application can tailor its operations to your needs, likes and dislikes by gathering and remembering information about your preferences. 

You can choose to accept or decline cookies. Most web browsers automatically accept cookies, but you can usually modify your browser setting to decline cookies if you prefer. This may prevent you from taking full advantage of the website. 

We provide links to other websites 

Our website may contain links to other websites of interest. However, once you have used these links to leave our site, you should note that we do not have any control over that other website. Therefore, we cannot be responsible for the protection and privacy of any information which you provide whilst visiting such sites and such sites are not governed by this privacy statement. You should exercise caution and look at the privacy statement applicable to the website in question.