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Survey on the use of non-cryopreserved hematopoietic stem cells for autologous HSCT in adults

Infectious Diseases Working Party (IDWP)
Transplant Complications Working Party (TCWP)
Study type:
Study number:
 
Type of Stem Cell Treatment:
Autologous
Diseases:
Complications: infectious
Short title:
Non-cryo in AHSCT in adults
Primary objective:
Analysis of the prevalence of the use of non-cryopreserved cells for AHSCT in adults in EBMT centers from 1/1/ 2010 to 31/12/ 2021
Key inclusion criteria:
EBMT centers performing autologous HSCT between 01/01/2010 and 31/12/2021.
Country:
All EBMT member countries
Principal investigator:
Emilian Snarski
EBMT Study coordinator:
Lotus Wendel
Study coordinator email:
idwp.ebmt@lumc.nl
EBMT Study Unit:
Leiden Study Unit
Reason for processing personal data:
Research and Development of new and improved transplant, cell therapy and immunosuppression procedures.
Categories of personal data collected:
Centers’ contact / Centers’ policies
Recipients who may access the data:
Leiden Study Unit
3rd-party processors of Personal Data on behalf of EBMT/Service provider:
No

Privacy notices

Article 6 lawful basis for processing personal data:
Article 6.1 (a) - Consent (Collection)
Article 9 basis for processing special category data:
Article 9(2) (a) - Consent (Collection)

Data Protection Impact Assessments

Rights available to individuals:
Access
Data portability
Rectification
Objection
Deletion
Is a Data Protection Impact Assessment required?:
DPIA performed for EBMT Registry (WP & NIS Studies)
Retention Schedule (if possible):
at least 15 years after completion or discontinuation of the study (WP/NIS)