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MACRO update and Centre training

by shelley.hewerdine@ebmt.org
Registry/Data Management
Training/Education

MACRO Update

The Registry Upgrade project is coming closer to go-live. We do not have the exact launch date yet, but it will be after the EBMT Annual Meeting in Frankfurt which takes place at the end of March.

Thorough Data Entry testing has been carried out by representatives in the Registry team, EBMT study offices, National Registries and a small number of member centres. We would like to thank all the beta testers for their help with this important part of the project.

The Data Retrieval function needed more development to ensure it meets the needs of EBMT users running reports. Due to this, we postponed our Train the Trainer session and this took place on 11-12 February 2019. We are pleased to announce the Centre training plans below.

Data Migration tests are being carried out and centres are starting to receive queries regarding records with inconsistent dates or status, which will be problematic when migrating the data to the new system. We appreciate your cooperation with this.

Centre Training

Plans for MACRO training are now underway: 

Face-to-face training for transplant centres is planned to take place over the next few months. Sessions will concentrate on the user interface and Data Entry. This will be in the form of:

  1. Training organised by National Registries for their centres
  2. Group training for centres from a given country/region
  3. Group training sessions at EBMT 2019 Frankfurt

Information will be updated on the Data Management Education & Training page and you can also find the link to register for MACRO training sessions at EBMT 2019. We will list all training sessions organised by EBMT on the above web page as the dates become available.

Centres within National Registries will be contacted directly by their society regarding MACRO training.

Please contact us on registryhelpdesk@ebmt.org if you have any questions.

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The personal data provided will be processed according to the General Data Protection Regulation (GDPR 2016/679 ) and incorporated to a file property of EBMT which will be allocated in the EEA (European Economic Area) or in countries that are provided with the same level of protection for privacy such as countries that adhere to EU-US and Swiss-US Privacy Shield Frameworks.
Data Subjects have the right of access to his or her data and the right to rectification of any inaccurate or incomplete personal data. The Data Subject also has the right to withdraw consent, this wish will be respected, and the personal will no longer be made available. If the processing operation is unlawful the Data Subject has the right to request deletion of that data. Please write to data.protection@ebmt.org