Severe Aplastic Anaemia Working Party (SAAWP)
Study type:
Study number:
8409073
Type of Stem Cell Treatment:
Diseases:
Bone marrow failure
Short title:
Primary objective:
Describe the natural history of patients with SAA and/or PNH that evolve into a myeloid disease.
Key inclusion criteria:
Population: AML/MDS or any karyotypic abnormality secondary to a SAA or PNH diagnosis. We filter these abnormalities after the extraction
Comparision: SAA patients without karyotypic abnormality from the same centers as above
Starting point [T0]: SAA diagnosis, preferably. Otherwise, ATG
Time frame: diagnosis of SAA from 2000 onwards
Comparision: SAA patients without karyotypic abnormality from the same centers as above
Starting point [T0]: SAA diagnosis, preferably. Otherwise, ATG
Time frame: diagnosis of SAA from 2000 onwards
Country:
Principal investigator:
Pedro de Lima Prata
EBMT Study coordinator:
Brian Piepenbroek
Study coordinator email:
saawpebmt@lumc.nl