The EBMT Benchmarking project is approaching a significant milestone in October when the data completeness benchmark reports will be distributed to EBMT centres reporting to the registry who have met the inclusion criteria. Data completeness is a key element in clinical outcome benchmarking which will be next step likely to be completed in early 2021.
Centres will soon receive a notification that their report is available for download from a dedicated folder hosted on Google Drive. Credentials will be sent to each Principle Investigator along with instructions for how to access the files. The report will be made available in HTML and PDF formats.
This is a ‘first phase’ performance benchmark report to find the position of your centre compared to other anonymized EBMT centres for data completeness of one-year follow-up, as registered in the EBMT database.
In the long-term, it is expected that the new registry will incorporate outcome reporting into the same platform removing the need for centralised distribution.
Special thanks are due to Dirk-Jan Eikema of the EBMT Leiden Office along with Hein Putter of LUMC Department of Biostatistics, Riccardo Saccardi, former JACIE Medical Director, and Isabel Sánchez-Ortega, EBMT Medical Officer for keeping the project progressing during 2020.
For a more detailed account of these criteria, of the overall objectives and results, and of the statistical methodology used, please refer to the position paper in Bone Marrow Transplantation (https://www.nature.com/articles/s41409-019-0718-7).