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Practices and management of post-transplant haemorrhagic cystitis in patients who undergo allogeneic haematopoietic stem cell transplantation

Infectious Diseases Working Party (IDWP)
Study type:
Study number:
Type of Stem Cell Treatment:
All diseases
Short title:
HC post-allo-HSCT
Primary objective:
Assess the practices and management, and incidence and outcome of HC post-allogeneic HSCT over to the year 2023.
Key inclusion criteria:
Allogeneic transplant
All EBMT member countries
Principal investigator:
Simone Cesaro
EBMT Study coordinator:
Inge Verheggen
Study coordinator email:
Reason for processing personal data:
Research and Development of new and improved transplant, cell therapy and immunosuppression procedures.
Categories of personal data collected:
DOB/YOB, gender
Medical data already reported to the EBMT Registry
Study Specific Questionnaire (MED-C)
Recipients who may access the data:
Leiden Study Unit
Statistical Unit
3rd-party processors of Personal Data on behalf of EBMT/Service provider:
Not applicable to surveys

Privacy notices

Article 6 lawful basis for processing personal data:
Not applicable to surveys
Article 9 basis for processing special category data:
Not applicable to surveys

Data Protection Impact Assessments

Rights available to individuals:
Data portability
Is a Data Protection Impact Assessment required?:
Not applicable to surveys
Retention Schedule (if possible):
Not applicable to surveys