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Late effects after hematopoietic stem cell transplantation in patients with HLH

Paediatric Diseases Working Party (PDWP)
Inborn Errors Working Party (IEWP)
Transplant Complications Working Party (TCWP)
Study number:
Type of transplant:
Short title:
Late effects after HSCT in patients with HLH
Study status:
Data cleaning and analysis
Deadline for data collection:
Study design:
Primary objective:
The scope of this research proposal is to evaluate late-effects in HLH long-term survivors, defined here as at least two years from completion of HSCT and currently free of disease.
Key inclusion criteria:
Children aged 0-18 years Transplanted for HLH
Transplanted from 1 January 2004 to 31 December 2015

Principal investigator:
AnnaCarin Horne
Principal investigator email:
EBMT Study coordinator:
Arnaud Dalissier
Study coordinator email: