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Registry upgrade project - progress

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Registry/Data Management

MACRO Update

The Registry Upgrade project continues to progress. Thorough Data Entry testing has been carried out by representatives in the Registry team, EBMT study offices, National Registries and a small number of member centres. We would like to thank all the beta testers for their help with this important part of the project.

The Data Retrieval function is still in development to ensure it meets the needs of EBMT users running reports. Due to this, the Train the Trainer session is now due to take place in February 2019. This will cause some slight delays to the schedule for Centre Training also.

We will be offering MACRO training at EBMT 2019 in Frankfurt, as well as regional training sessions around that time for centres outside of National Registries. Centres within National Registries will be contacted directly by their society regarding MACRO training plans. The new system will go live after the EBMT 2019 annual meeting has taken place.

As usual, educational presentations will also take place for Data Managers at EBMT 2019 on Monday & Tuesday: Check the preliminary program.

 

 

 

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The personal data provided will be processed according to the General Data Protection Regulation (GDPR 2016/679 ) and incorporated to a file property of EBMT which will be allocated in the EEA (European Economic Area) or in countries that are provided with the same level of protection for privacy such as countries that adhere to EU-US and Swiss-US Privacy Shield Frameworks.
Data Subjects have the right of access to his or her data and the right to rectification of any inaccurate or incomplete personal data. The Data Subject also has the right to withdraw consent, this wish will be respected, and the personal will no longer be made available. If the processing operation is unlawful the Data Subject has the right to request deletion of that data. Please write to data.protection@ebmt.org