Get general information about how the Registry is set up, the data management system, and system requirements.
Here you will find all the forms required for Data Collection, as well as descriptions of the three different kinds of forms: HSCT Registrations, Cell Therapy, and Donor Outcomes. This page also offers downloadable manuals to guide in the completion of the forms.
The Data Submission page offers information about how to gain access to the registry to submit data, as well as when Data Submission is expected from each centre. Manuals and training materials are available to aid in this process.
The Data Retrieval page offers information about how to access your own and EBMT data, and how to request access to data that is not your own. It also contains information about how to best process your data after download.
To facilitate data reporting for centres, the EBMT will enter into sharing agreements with certain groups to which centres are already submitting data. These include several national registries and other organisations. The EBMT can also share data, upon approval request, with Study Groups performing research.
Data Management Education & Training
This page contains a full list of all the Data Management Education and Training materials available, as well as the upcoming Training and Data Management events.