Top Back to top

How to Use the Registry

Registry Structure

Get general information about how the Registry is set up, the data management system, and system requirements. 

Registry Structure

Data Collection

Here you will find all the forms required for Data Collection, as well as descriptions of the three different kinds of forms: HSCT Registrations, Cell Therapy, and Donor Outcomes. This page also offers downloadable manuals to guide in the completion of the forms.

More

Data Submission

The Data Submission page offers information about how to gain access to the registry to submit data, as well as when Data Submission is expected from each centre. Manuals and training materials are available to aid in this process.

More

Data Retrieval

The Data Retrieval page offers information about how to access your own and EBMT data, and how to request access to data that is not your own. It also contains information about how to best process your data after download.

More

Data Sharing

To facilitate data reporting for centres, the EBMT will enter into sharing agreements with certain groups to which centres are already submitting data. These include several national registries and other organisations. The EBMT can also share data, upon approval request, with Study Groups performing research.

More

Data Management Education & Training

This page contains a full list of all the Data Management Education and Training materials available, as well as the upcoming Training and Data Management events.

More

Need help?

The personal data provided will be processed according to the General Data Protection Regulation (GDPR 2016/679 ) and incorporated to a file property of EBMT which will be allocated in the EEA (European Economic Area) or in countries that are provided with the same level of protection for privacy such as countries that adhere to EU-US and Swiss-US Privacy Shield Frameworks.
Data Subjects have the right of access to his or her data and the right to rectification of any inaccurate or incomplete personal data. The Data Subject also has the right to withdraw consent, this wish will be respected, and the personal will no longer be made available. If the processing operation is unlawful the Data Subject has the right to request deletion of that data. Please write to data.protection@ebmt.org