The mission of the EBMT Patient Engagement Taskforce is to promote active, collaborative participation of patients, donors, caregivers and health care professionals as partners in the society's activities.
The taskforce is a multi-disciplinary team of clinicians, researchers, other healthcare professionals, patients, caregivers, donors, and other stakeholders involved in transplantation and cell therapy.
Patient Engagement Taskforce Core Team
Individual Members
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Objective
Patients, caregivers, donors and health care professionals (HCPs) have complementary strengths and a common goal: optimal care and therapy outcomes.
The taskforce’s objective is to offer a platform to promote interaction between patients/caregivers and healthcare providers and show the added value of such an approach.
This initiative should lead to new common integrated pathways within EBMT to improve the whole transplantation and cell therapy process.
Activities
EBMT 47th Annual Meeting
Oral presentation of the abstract OS14-2 ONE THOUSAND VOICES ADDRESS PATIENT ENGAGEMENT IN HEMATOPOIETIC STEM CELL TRANSPLANTATION AND CELL THERAPY: RESULTS OF A SURVEY FROM THE EBMT
This presentation will be available on-demand throughout the congress. For more information, please check the scientific programme.
Special Session SS01: Interactive debate on patient engagement in transplantation and cell therapy
Sunday, March 14, 16:00 - 17:30, Auditorium 6
Plenary Session P3: Patient Reported Outcomes - A new paradigm in HSCT
Wednesday, March 17, 14:30 - 15:45, Auditorium 1
The full content from these sessions will remain available in the On-Demand Library until May 17, 2021 in the virtual meeting platform. After that date most of the content will be available for the EBMT Members on the e-Learning platform.
15th Patient, Family & Donor Day - Recorded presentations
Other upcoming projects
- EBMT Patient Reported Outcome Registry Project
- Provide patient-specific educational material (FAQ webpage, webinars, etc.)
- Promote collaboration with members of the Patient Advocacy Committee
- Increase patient/caregiver/donor contact database
Strategy
The task force meets on a regular basis with engaged representatives from multiple stakeholder groups to discuss current projects.
A collaboration with the CIBMTR and other patient engagement initiatives is also ongoing to promote international synergy.
Achievements
Pan-European umbrella patient organisations
Need help to get started ?
If your organisation is missing from the list below, please send us an email and we will add you on.
Pan-European disease-specific organisations
Organisations giving support in patient engagement in research
If your initiative is missing from the list below, please send us an email and we will add you on.
EU initatives involving patients in hematology / cellular therapy
If your initiative is missing from the list below, please send us an email and we will add you on.
Patient support groups linked to HCT and cellular therapy
Taskforce Members
