The following list represents Studies for which calls for participation are currently open. Learn about the individual studies below, and click the link to find out more about the Working Party responsible for the study.
The impact of the new coronavirus SARS-CoV 2 on immunosuppressed patients such as stem cell transplant recipients and CAR-T cell recipients has been significant. However, there is still a lot of missing knowledge. The Infectious Diseases Working Party of the EBMT therefore has collected data since early March 2020. This activity is still ongoing and we believe it is of major importance to continue collecting information. We therefore hope you are willing to continue participating in the ongoing prospective survey about the impact of COVID-19 on patients having undergone stem cell or CAR T cell therapy in the data registration.
The survey is in 3 steps:
- Please fill in the registration form for each patient diagnosed with covid-19 at your center and submit the completed form to the EBMT IDWP Data office.
- After resolution of the episode, we will collect more information regarding the COVID-19 infection and its outcome. Please fill in the follow-up form.
- We will thereafter merge the information with the MED-A form to get the basic patient information. Therefor, please make sure the patient is registered in the EBMT database
All the forms are available below and are protected with a password: covid_idwp
Contact
For any question about this survey, please email idwp.ebmt@lumc.nl. If you do not wish to participate, please let us know as well.
Per Ljungman
Rafael de la Camara
Nicolaus Kröger
Jan Styczynski
Stephan Mielke
Malgorzata Mikulska
Patients who underwent HSCT, both allogeneic or autologous, between January 1st, 2021 and December 31st, 2022 and developed an infectious (any CTCAE grade) or relevant (CTCAE >1°) non-infectious CNS disorder after HSCT in this period can be included in this study. If you'd like to receive more information, or if you have an eligible patient, please contact the IDWP data office (email can be found below) and we will send you the registration form and all other required information to join our study.