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Prospective survey on impact of COVID-19 on stem cell transplant recipients and patients treated with CAR-T cells

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The impact of the new coronavirus SARS-CoV 2 on immunosuppressed patients such as stem cell transplant recipients and CAR-T cell recipients has been significant. However, there is still a lot of missing knowledge. The Infectious Diseases Working Party of the EBMT therefore has collected data since early March. This activity is still ongoing and we believe it is of major importance to continue collecting information. We therefore hope you are willing to continue participating in the ongoing prospective survey about the impact of COVID-19 on patients having undergone stem cell or CAR T cell therapy in the data registration.

The survey is in two steps:

  1. Please, fill in the registration form for each patient diagnosed with covid-19 at your center and submit the completed form to the EBMT IDWP Data office. The form is protected with a password: covid_idwp
  2. To update information quickly, we have also constructed a very short form to be submitted 2 weeks after diagnosis of COVID-19

After resolution of the episode, we will collect more information regarding the COVID-19 infection and its outcome. We will thereafter merge the information with the MED-A form to get the basic patient information. 

We believe this is an important survey to collect information about this new virus associated disease and hope you and your center are willing to participate. As of today (October 9), we have more than 400 patients registered. We also urge you to submit follow-up information.

For any question about this survey, please email idwp.ebmt@lumc.nl. If you do not wish to participate, please let us know as well. 

Per Ljungman
Rafael de la Camara
Nicolaus Kröger
Jan Styczynski
Stephan Mielke
Malgorzata Mikulska