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Introducing the New EBMT Registry: A Milestone Achieved

Registry/Data Management
Registry Committee

We are thrilled to announce the official launch of the new EBMT Registry, a remarkable achievement reflecting years of dedicated teamwork. This innovative platform replaces ProMISe and Castor, streamlining our data management practices for a more cohesive user experience. 

The purpose of the EBMT Registry remains clear: to provide a pool of data to EBMT members to perform studies, assess epidemiological trends, and ultimately improve patients’ lives. Initially not all functionality will be present at launch date but will successively be added including continued migration of data from the ProMISe database throughout the remainder of 2023 and into 2024. We will provide updates during this process. 

It's important to highlight that terminology updates have been implemented. MED-A is now referred to as the Core Dataset, and while the launch of the Extended Dataset (previously MED-B) is planned for 2024, preparations are well underway. 

To ensure access to the new EBMT Registry, the Principal Investigator (PI) of each center should submit the necessary user access request form(s). Then, successfully complete the mandatory e-learning Registry Training Course and pass the exam to receive the certification.

Starting from 5 September 2023, our EBMT Registry Helpdesk Team will hold weekly online Q&A sessions. These sessions are tailored to provide support, address concerns, and quickly respond to any questions you have. For more information, take a look at the EBMT Registry webpage.

ProMISe export functionalities

We are facing an unexpected issue with the ProMISe server. We are currently working on this issue and expect we can reopen ProMISe next week. We will keep you updated on the matter.