Data Retrieval

Data managers with access to the EBMT Registry can directly extract all the information associated with the patients of their centres via the EBMT Registry web application.

In order to do so, simply select the required patients in the Patient Registry overview and select Export Selection

This will generate a downloadable file that contains all patient event information submitted for the selected patients in a wide format comma separated value file.

Data managers can access the MicroStrategy Library available at EBMT Registry by selecting its access button in the main sidebar of the Registry application.

This library contains more than 60 different custom made reports designed to fit the different needs of all EBMT members, with a wide array of dashboards aimed at providing users with quick overviews and insights about the information available.

In the library, users can find:

• Application based reports for those looking to format the raw Registry data by themselves
• Data Quality reports to obtain quick and easy overviews of the status of the data entered in the Registry by their respective centres
• OMOP based reports for those looking for formatted, easy to read information in a format ready to be used for analysis
• OMOP tables with information in OMOP format.

Among the OMOP based reports, users will find:

1. Diagnosis overview
2. Status at treatment overview
3. Treatment Overview
4. HLA information
5. Infectious & Non infectious complications 
6. Benchmarking
7. Drug report
8. Relapse information
9. Chimaerism
10. Cell infusion
11. Cell therapy report
12. GvHD

For the Data Quality section, the following reports are available:

1. Pending Follow up overview
2. Event Links overview
3. Benchmarking Eligibility criteria - Updated yearly
4. Patient Timeline overview