The EBMT requests from all member centres that all patients undergoing an HCT, treatment for aplastic anaemia, or any type of cellular therapy be registered in the EBMT Registry. The EBMT Registry Data Collection Forms aid the collection of all the data that is required to be submitted to the EBMT Registry.
Centres are responsible for ensuring that patients and donors consent to their data being transferred to the EBMT, prior to collecting and submitting data to the EBMT. Informed consent templates and further instructions on obtaining informed consent can be found on the Informed Consent page.
How to request access to the EBMT Registry
Data Editor Access
Data Editor access allows a user to view, add, edit and export data within their context. The user can also see and answer data queries.
Users will have to successfully complete the required e-learning training and obtain certification before they can access the EBMT Registry. Training on how to use the EBMT Registry is arranged automatically by EBMT when a person requests access to the EBMT Registry.
All requests for Data Editor access to submit data to the EBMT Registry must be made by completing fully and correctly the form below. All completed forms must be emailed to registryhelpdesk@ebmt.org
The EBMT Registry Conditions of Use can be found below.
Data Viewer Access
Data Viewer access allows a user to view and export already submitted data within their context.
Users will have to successfully complete the required e-learning training and obtain certification before they can access the EBMT Registry. Training on how to use the EBMT Registry is arranged automatically by EBMT when a person requests access to the EBMT Registry.
All requests for Data Viewer access to the EBMT Registry must be made by completing fully and correctly the form below. All completed forms must be emailed to registryhelpdesk@ebmt.org
The EBMT Registry Conditions of Use can be found below.
Access to patients given a prior treatment in another centre
All data pertaining to one patient must be submitted under the same patient record, even if a patient has different treatments in different centres.
All requests for access to a patient who has been given a prior treatment to another centre must be made by completing fully and correctly the form below. All completed forms must be emailed to registryhelpdesk@ebmt.org
National Registries
A small number of National Registries submit data to the EBMT Registry on behalf of their centres. More information is available on the Data Sharing page.