Since 1990, the EBMT has carried out the annual Transplant Activity Survey to prospectively collect numbers of patients treated with a haematopoietic stem cell transplant (HSCT) according to indication, donor type and stem cell source. Any clinical units that perform any type of stem cell transplant can participate in the survey whether they are members of the EBMT or not.
The Transplant Activity Survey has become a tool for assessing the real picture of HSCT in Europe: exposing trends, illustrating the current status and providing essential data for counselling and planning. Its structure, standardised over many years, and the excellent commitment by the participating teams make it possible to observe changes over time and to evaluate factors associated with such changes. This Activity Survey is relevant to individual transplant teams, national organisations, health care agencies and the industry as well as patients. All transplant teams are strongly encouraged to join the survey.
When & How to submit survey data
Survey data requests are sent to the centres in December of the year being surveyed and are collected during the first half of the following year. The 2023 survey is now open, the deadline for submission of the 2023 data is the 1 April, 2024.
The data is captured via on-line survey (link is being sent to each centre individually by EBMT Activity Survey Team), whereby each transplanting team can report their entire annual activity by indication, donor type and stem cell source. It allows the reporting of first allografts, of first autografts (rows 1-32 and sum in row 33) and of additional transplants or retransplants performed due to disease progression, engraftment failure or as part of a planned multiple transplant protocol (row 34). Row 35 (all transplants) is the sum of row 33 + row 34.
Paediatric transplant activity (<18 years at transplant) can be reported both in the main table (row 1-32) by indication, donor type and stem cell source and additionally as a total number in row 36. Entering the total numbers of paediatric patients additionally in row 36, enables us to perform a separate analysis of the paediatric and adult data.
The total number of non-myeloablative (including RIC) allogeneic transplants, either first or non-first, can be reported in row 37.
The number of patients receiving un-manipulated donor lymphocyte infusions (DLI) in 2023 can be reported in row 38. Please enter your data in the field according to the main reason for giving the DLI therapy. Please report the number of patients and not the number of infusions.
Number of patients receiving Immunosuppressive Treatments (IST) for Bone Marrow Failure Syndromes (acquired and congenital) in 2023 can be reported in row 39. Please enter the number of patients treated with IST for Aplastic Anaemia (AA) and for other Bone Marrow Failure Syndromes separately.
Table 2 is dedicated to the reporting of non HSCT cell therapies.
Report the number of patients receiving cell therapies using manipulated or selected cells in your centre in 2023 by indication and donor type in rows 1-9. Report the number of patients and not the number of infusions: E.g., a patient with three NK infusions is counted as one patient. Cell therapies can be reported within or outside of the context of HSCT.
Please also report CAR-T patients treated in clinical trials, as this survey does not affect any confidentiality issues and provides an overview of how many therapies are performed in Europe each year.
For help in reporting, please read the ‘Activity survey manual’ and ‘Guidelines’ below or contact us.
Please submit your data using on-line survey.
If you are unable to submit your data via on-line survey please contact us.
How to submit your data by either mail or post:
- Download the EBMT survey on transplant activity 2023 excel document below.
- Complete the relevant data fields.
- Name and save your file with your CIC number and or centre details. If you do not have a CIC number, name the file after the name of your institution.
- Email the form to the survey coordinator (firstname.lastname@example.org) or return by post to:
EBMT Transplant Activity Survey Team
2333 AA Leiden,
Manual & Guideline
Before you complete the Survey, please read the 'Activity Survey Manual' and 'Guidelines' below.
The Survey is available on-line and in excel and pdf format below.
It should be completed in the manner indicated in the How & When to Submit Survey Data section above.
How can I see the results?
Data from the most recent survey year are presented at the EBMT annual meeting and are available to participating teams and sponsors. If you are an EBMT Member and if you want to access the most recent data, please contact the Activity Survey Coordinator.
External persons or organisations may also apply for access to the survey data against payment of a fee. Please provide detailed information about the data required and its intended use to the Activity Survey Coordinator, who will assess the feasibility of the request before passing it on to the EBMT for approval and costing.
Please note that some of these data may not have been published and should be treated as confidential. It is for internal use only and may not be used for publication without obtaining prior consent.
Activity Survey data is published as a peer reviewed publication in Bone Marrow Transplantation each year. A full set of slides is prepared annually showing the trends and developments over the years. A selection of these slides is available on request. Individual analyses maybe requested by the EBMT Partners of Excellence and participating teams upon justification of its use.
EBMT Transplant Activity Survey Team
Please contact us at email@example.com