The EBMT Registry is a web application where data entry can take place. The web application was released for all users on August 24th, 2023. The release version is referred to as version 1.0.
Important information
Since the latest release of the EBMT Registry (April 24th, version 2.2), a new pop-up can be seen when opening a patient that has existing events. The popup will notify you that changing a field value will remove entered data, showing for what fields this is applicable. This pop-up is triggered when migrated data appears in fields that are not visible due to visibility conditions in the EBMT Registry (e.g. if the patient is not dead, you will not see the cause of death).
The message can be ignored now by pressing 'submit change'. In the next maintenance mode, which will take place May 14th-May17th, the data will be restored.
Known bugs at release and fix dates
When users started working with the EBMT Registry, some bugs were reported. Some of these have been resolved already, others are pending resolution with the next release.
| Issue | Fix date |
|---|---|
| Issues with saving forms that have checkbox items | August 31, 2023 |
| Searching for dates does not work | September 4, 2023 |
| Sorting does not work | End of September release |
| Issues with saving anonymous events | August 31, 2023 |
| Errors/warnings appear on empty fields | End of September release |
| Typo in Ethnicity options | Release 1.1 |
| Hint text position is misplaced | Release 1.1 |
| Events that require your attention displaying wrong events | Release 1.1 |
| Events that display your attention does not redirect to the correct event | Release 1.1 |
| Fields marked as Ongoing/Not Evaluated/Unknown are not cleared automatically after entering data | Release 1.1 |
| "Other" could not be found in select-search fields | Release 1.2 |
| Patients can be created in the future | Release 1.2 |
| Hidden fields can activate error/warnings | Release 1.2 |
| Endpoint returning error 500 on Filter based virtual registries | Release 1.4 |
| Donor GRID values upper limit | Release 1.4 |
| Further improvement on Other searches | Release 1.4 |
| Empty patient page for Data Monitors/Viewers | Release 1.4 |
| Events can clutter the timeline | Release 1.4 |
| Dashboard displaying wrong information | Release 1.5 |
| Patient information variables not working on filtering | Release 1.5 |
| Errors incorrectly triggered on dates and numeric fields | Release 1.6 |
| Ethnicity questions now display: "Only for UK" | Release 1.9 |
| CIC code now displayed during patient creation | Release 1.9 |
| Data viewers not being able to see all its patients | Release 1.9 |
Release notes
As the EBMT Registry is in ongoing development, new functionalities will be added every once in a while. The addition of new functionalities, improvements of existing functionalities and bug fixes are called releases.
| Version | Release date |
|---|---|
| 1.0 | August 24th, 2023 |
| 1.1 | September 26th, 2023 |
| 1.2 | October 30th, 2023 |
| 1.3 | October 30th, 2023 |
| 1.4 | December 4th, 2023 |
| 1.5 | December 12th, 2023 |
| 1.6 | January 30th, 2024 |
| 1.9 (1.7 + 1.8) | March 4th, 2024 |
Version 1.9 release notes
Release date: March 4th, 2024. Releases 1.7 and 1.8 were combined into 1.9.
- Bug fixes:
- Data editors should be able to update consent sub-questions.
- Data monitor permissions were spilling to data viewers causing them to not see the totality of their patients.
- UPN filter improved to deal better with cap sensitivity.
- Ethnicity questions now display a disclaimer "UK only".
- CIC code now is displayed during patient creation.
- Archival of events now is clearly defined in the audit trail.
- Events that require your attention has been improved to reduce the number of warnings triggered.
- Validations to date fields have been updated and will no longer trigger undesired errors or warnings.
Version 1.6 release notes
Release date: January 30th, 2024
- New features were added to the EBMT Registry:
- Changing patient data now requires a reason for change.
- Date of informed consent has been updated to First date of Informed Consent.
- Bug fixes:
- Data editors should be able to update consent sub-questions
- Export button will no longer be greyed out when the number of patients to export appears as Unknown.
- The algorithm used to search the options in dropdown has been update to find Other faster.
- Validations to date fields have been updated and will no longer trigger undesired errors or warnings.
Version 1.5 release notes
Release date: December 12th, 2023
- New features were added to the EBMT Registry:
- Filtering on special statuses, such as Not Evaluated and ongoing is now possible.
- Bug fixes:
- Audit trail has been improved to increment the information available for administrators.
- Filtering on patient information variables is working as expected.
- Dashboards displayed wrong information in some cases, this has been addressed to show the correct information.
- Further changes have been performed to the tentative patients check.
Version 1.4 release notes
Release date: December 4th, 2023
- New features were added to the EBMT Registry:
- Filtering on special statuses, such as Unknown is now possible.
- Now it is possible to add notes to patients.
- Centre based virtual registry users can create anonymous events.
- Bug fixes:
- Endpoint returning error 500 on Filter based virtual registries has been fixed.
- Donor GRID values upper limit was removed.
- Further improvement on Other searches were implemented.
- Empty patient page for Data Monitors/Viewers should display appropiate patients.
- Events timeline was re-designed to avoid accumulation of events.
Version 1.3 release notes
Release date: October 30th, 2023
- Small improvements over 1.2:
- Data editors can now update consent status.
Version 1.2 release notes
Release date: October 30th, 2023
- New features were added to the EBMT Registry:
- Filtering on empty fields.
- Making a PDF printable version of an event.
- Export functionality for data editors and data viewers.
- Maintenance mode so the EBMT staff can do changes to the platform and migration of legacy data safely.
- Bug fixes:
- "Other" cannot be found in select-search fields has been addressed.
- It is no longer possible to create patients with date of event in the future.
- Hidden fields do not trigger errors/warnings anymore.
Version 1.1 release notes
Release date: September 26th, 2023
- New features were added to the EBMT Registry:
- Filtering now allows to filter on centre properties such as CIC (centre identification code) or Country. Furthermore, now it is possible to filter by event without adding any extra clause, and on event creation date.
- Radio buttons can be cleared in case of erroneous data entry
- EBMT personnel will now have the capability to release predefined filters for all users
- Centre-based virtual registries will now allow users to see the anonymous events associated with the centre members of the virtual registry.
- Improvements to the EBMT Registry:
- Demo environments can be clearly distinguished from production now to avoid entering data in the wrong section.
- The events in the overview ‘events that require your attention’ now redirect to the relevant event.
- Bug fixes:
- Fixed a typo in ethnicity options
- Hint texts has been positioned more appropriately
- Events that require your attention will no longer display events that do not require attention. Furthermore, now selecting the events that require your attention will redirect the user to the correct event.
- Fields marked as Ongoing/Not evaluated/Unknown will clear its greyed out status automatically when data is entered without a need for the user to click on it.
Version 1.0 release notes
Release date: August 24th, 2023
- Release of the tool to the public