Severe Aplastic Anaemia Working Party (SAAWP)
Type d'étude:
Numéro de l'étude:
8409073
Type de traitement à base de cellules souches:
Maladies:
Bone marrow failure
Titre court:
Objectif principal:
Describe the natural history of patients with SAA and/or PNH that evolve into a myeloid disease.
Principaux critères d'inclusion:
Population: AML/MDS or any karyotypic abnormality secondary to a SAA or PNH diagnosis. We filter these abnormalities after the extraction
Comparision: SAA patients without karyotypic abnormality from the same centers as above
Starting point [T0]: SAA diagnosis, preferably. Otherwise, ATG
Time frame: diagnosis of SAA from 2000 onwards
Comparision: SAA patients without karyotypic abnormality from the same centers as above
Starting point [T0]: SAA diagnosis, preferably. Otherwise, ATG
Time frame: diagnosis of SAA from 2000 onwards
Pays:
Investigateur principal:
Pedro de Lima Prata
Coordinateur EBMT de l'étude:
Brian Piepenbroek
E-mail du coordinateur de l'étude:
saawpebmt@lumc.nl