Since 1990, the EBMT has annually conducted the Transplant Activity Survey to gather crucial hematopoietic stem cell transplant (HSCT) patient data in Europe. It was established by Alois Gratwohl and run by Helen Baldomero in Basel, Switzerland under the patronage of the University Hospital Basel. Since the retirement of Alois in 2010, it was taken over by Jakob Passweg, Head of Haematology in Basel.
The survey, running now for 33 years in Europe and the surrounding countries, has increased in size from 143 centres in 20 countries in 1990 to over 730 centres in 54 countries. Each centre contributing their transplant activity and more recently, their cellular therapy activity via the survey each year.
We deeply appreciate all centres’ ongoing participation in the activity survey over the last 33 years by reporting their annual data, making it an extremely successful enterprise which has become an essential part of the EBMT.
We would like to take this opportunity to extend our sincere gratitude to Helen and her colleagues for their dedication and hard work in managing the survey for so many years. Their efforts have been invaluable to the success of this initiative.
The Transplant Activity Survey has proven to be an extremely valuable tool to assess and share both transplant and cellular therapy activities with other scientific communities globally. It allows EBMT to analyse, publish and share valuable information on trends, developments and major changes not only within the EBMT environment as a whole but also with transplant centres, working parties, partners and many more experts in the field of Hematopoietic Stem Cell Transplant & Cellular Therapies technology. It is used for scientific purposes, economic planning and by health care providers. Survey data contribute to quality control of the EBMT registry and importantly fosters the community spirit of the EBMT.
In 2024, the survey management will be taken over by the EBMT Activity Survey Team in Leiden in preparation for the forthcoming retirement of Helen and Jakob. Both will continue to support the EBMT Activity Survey team during the years 2024-2025 to enable a successful transition period.
EBMT is pleased to introduce a modernized and digitalized online version of the Activity Survey. The new online form includes user-friendly features, such as automated counts, improved data accuracy, the ability to save, download or print the form. We strongly encourage you to use the online form for a streamlined and efficient survey experience.
Nevertheless, for those who have difficulties completing the survey online alternative methods of survey completion, as outlined in the manual, remain available.
For detailed information about the Transplant Activity Survey, please visit our webpage which will provide comprehensive information and the survey manual for 2023 data collection. The manual will be available in multiple languages.
An email with the site specific link to fill in the online survey for the 2023 data collection will be sent to centers between 6th and 14th of December 2023.
With this online Activity Survey, we are making a big step into the digitalized world. We hope to collect the data more quickly and with the implemented calculation of the total within the survey, the possibility to check your reported data will be enhanced. The publication of the survey results is expected to be available earlier.
We're enthusiastic about the survey's future and value your ongoing support. For questions, contact us via email at activitysurvey@ebmt.org