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Survival and late effects after hematopoietic stem cell transplantation in patients with HLH

Paediatric Diseases Working Party (PDWP)
Inborn Errors Working Party (IEWP)
Transplant Complications Working Party (TCWP)
Study number:
Type of transplant:
Short title:
Study status:
Fusion of the database EBMT CIBMTR
Deadline for data collection:
Study design:
Primary objective:
The scope of this research proposal is to evaluate survival after HSCT for HLH. We also want evaluate late-effects in HLH long-term survivors, defined here as at least two years from completion of HSCT and currently free of disease.
Key inclusion criteria:
Children aged 0-18 years who were transplanted for HLH, during the time period
spanning 1 January 2004 to 31 December 2015
Principal investigator:
AnnaCarin Horne
Principal investigator email: