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Allogeneic HSCT in adolescents and young adults (AYA) with primary immunodeficiency diseases (PID)

Inborn Errors Working Party (IEWP)
Study number:
Short title:
Study status:
Data collection
Deadline for data collection:
Study design:
Retrospective study with additional data collection
Primary objective:
Evaluate the predictive capacity of pre-Allo HSCT HCT-CI and disease complications on OS and EFS
Key inclusion criteria:
• diagnosis of PID
• age at first HSCT ≥15 years
• allogeneic HSCT
• date of transplant 1.1.2000 – 31.12.2018

If you wish to participate in this study and have not been contacted by the data office please send an email to:
Principal investigator:
Emma Morris & Michael Albert
Principal investigator email:
EBMT Study coordinator:
Sheree Hazelaar
Study coordinator email: