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EBMT To view Candidates |
For those using ProMISe:
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MED-A reporters: You will see a prompt after you have finished your MED-A First Report entry, asking whether or not you want to proceed and enter data from the MED-A Appendix.
MED-B reporters: The above prompt will also appear after you finish entering a MED-B. This is to facilitate the use of the "Comorbid conditions" items for any centre wishing to do so, and to allow CIBMTR research centres reporting MED-B to comply with CIBMTR requirements.
Advice for those submitting data via paper form
The Paris Office has been receiving both MED-A and B forms and multiple follow ups from a small number of centres - but we would like to save you some unnecessary work. Please note that you do not need to complete both MED-A and MED-B forms simultaneously since the information gets repeated. The MED-B includes all MED-A items, so either MED-A or MED-B data for a transplant can be sent to Paris (or your National Registry if applicable). With regard to follow up, if you are completing these forms retrospectively, it is not necessary to fill one per year, the last one summarising all events that have occurred will be sufficient. Unfortunately there is a severe lack of follow up in the Registry and we are currently trying to find ways to improve the level of follow up reporting.
Thank you for your continuous support and help with the data submission.
If you have any questions on the above please contact the Registry Helpdesk
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First ProMISe 2 Training Course in Turkey
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The very first training session on the EBMT registry database in Turkey took place on 17th & 18th October 2007 during the 33rd National Haematology Congress in Ankara. We would like to thank the Turkish Society of Hematology, Turkish Transplant Registry (TTR), Dr Günhan Gürman, Dr Mutlu Arat, Dr Fikret Arpaci, Dr Mehmet Ertem and the data manager, Dilek Dursen, for their invaluable help and enthusiasm in hosting the training. Our thanks also go to Hande Boyacıoğlu from the local congress agency Serenas, who ensured that the logistics and technical setup all ran very smoothly.
Carmen Ruiz de Elvira, Head of the Registry, travelled to Ankara to give the training on data entry and basic data retrieval, assisted by Emmanuelle Polge, ALWP Study Coordinator from the EBMT Office in Paris.
The objective of this first Data Managing course was to give a full introduction to ProMISe to the Turkish centres. Eighteen participants attended from various centres in Turkey, including research nurses, data managers, coordinators and haematologists. Many of them were non ProMISe users but some already had some experience in registering their data online.
The participants had the opportunity to discover more about ProMISe: how to access it, how to enter their MED-A or MED-B data and how to retrieve this data for their own reference and analyses at their local centre. This intensive course allowed the participants some time to pose questions and ask for practical help. The number of Turkish centres using ProMISe has since increased and we are very grateful for their time in attending this training and subsequently registering data.
Interested in providing a venue in your area for group ProMISe training?
In the future we hope to be involved in more training sessions of the same kind. Although we offer annual group training at the EBMT congress in March to give a basic introduction to data entry and retrieval, we also recognise the need to provide more training at a local level. The training that has taken place at national society meetings is of great benefit for delegates in terms of travelling distance and practical Promise help in their first language. In addition to Turkey: the Czech Republic, France, Germany, Italy and Spain have also hosted ProMISe 2 training through the EBMT in the past, and we look forward to more to come. Those national societies and others are now hosting some further national ProMISe training independently.
We are very interested in developing training programmes in regions without a national SCT Registry. Staff from the Central Registry Office travelled to a group training session organised by Lund, Sweden for example. As long as we can involve around 10 or more centres in your area and your choice of venue is well located with a suitable computer room, we have a pool of training volunteers ready and waiting to hear your offers.
Suggestions of more training venues in Outreach countries will also be particularly welcome.
For further information on venue requirements please contact the Registry Helpdesk
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