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Complications and Quality of Life

Introduction

The aim is to assess general health status, malignant and non-malignant late effects and quality of life in long-term survivors after HSCT through retrospective studies; to provide guidelines for screening and prevention of late complications and recommendations on screening and prevention of late effects after HSCT; and to coordinate education in the field of long-term survivorship. 

Members


Chairperson
Rafael Duarte
rduarte@iconcologia.net
 

 


 

Secretary
Grzegorz W. Basak 
gbasak@ib.amwaw.edu.pl
 
 
 
 
 
 
Study coordinator: Steffie van der Werf - cqwpebmt@lumc.nl
 

Surveys

Busulfan

Survey of the use of busulfan in the conditioning for allogeneic hematopoietic cell transplantation in adult.

This study aims to produce a statement of the current practice and recommendations for a standardized policy in the use of busulfan.

For more information about this study, please click HERE

Link: https://www.surveymonkey.com/r/busulphan

Transitional services:

A Multicentre survey regarding Provision of Long-term Monitoring including transition Services Following Allogeneic HSCT. We are looking at the different models of follow up service for long term survivors of transplantation. For paediatric/mixed adult-paediatric centres, this includes the models of care for looking after children as they transition from paediatric to adult care.

Link: https://www.surveymonkey.com/r/VLSNF9Z

DXA scans:

A multicentre survey for the investigation and management of abnormal bone mineral density after stem cell transplantation.

Link: https://www.surveymonkey.com/r/YDZDM5G

 

Related documents

 

Click HERE to view the publication list

Studies Coordinated by the CQWP

Click HERE to view the Current Research list
  • Non-interventional prospective study on metabolic syndrome after HSCT
 

How to get involved?

Please contact the Chairperson or the Secretary.

 

 

 
 
 
 

 News

 
15/03/2017
​March 2017 | Volume 56 - Issue 2... Read more >>
05/10/2016
​EBMT TV returns to 2017 Annual Meeting... Read more >>
26/09/2016
​The EBMT has contributed to the Innovative Medicines Intiative... Read more >>
10/05/2016
​More than 60 EBMT centres have already started entering their related donor data. We want to invite... Read more >>
 

 Events

 
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