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Q&A on the New Registry System

Will the new system have an impact on how we access or use the data we have submitted?​

Centres will continue to have access to all their data. The Registry will create a series of reports that will be available to all users. We expect their use will be easier than with the current system.
 

All data submitted by your centre to the EBMT in the past (with exceptions below) will be migrated to the new system and should be available once the system goes live. It is possible that some data is not transferred, either because it is highly incorrect (ie. transplant registrations submitted without diagnosis; only patient section filled in; etc.) or because its submission did not follow standardised procedures (no standard data collection forms were followed) and we have been unable to map it. In the latter case, and after assessing the situation, the Registry will undertake partial migrations of small amounts of data later during the year. 


How will the new system change our reporting processes?
  

The new system should make it easier to submit data, with data entry presented as data collection forms. We envision a more modular system but the final sequence in which forms are submitted will not change drastically. However, the EBMT is engaging in a brain storming process under the guidance of the Registry Committee Group on Data collection which –independently from the new system- may change the way we request transplant registrations. The results of this process will be announced independently.


 Will the new system require us to acquire new technology?
 

No, all you need is a standard web browser.


What kind of support can we expect as we begin to use the new system?
 

The Registry Helpdesk will continue function as usual and manuals will be provided for all functionality.​


How​ will our staff be trained to use the new Registry System?
 
If your centre belongs to a national registry, your national registry will arrange training sessions.
  

If your centre does not belong to a national registry, the EBMT will try to arrange training sessions in a well communicated location. To do this, the EBMT needs to find suitable venues that can support approximately 30 users on 15 to 30 computers. If your hospital or university has suitable computer rooms, and your city or town is reasonably well connected (airport or main rail exchange) please contact the EBMT at registryhelpdesk@ebmt.org to let us know. Our aim is to train between 25 to 30 centres per session. It is a lot of work for the Registry to train EBMT centres so any help you can provide in organising these sessions will be gratefully received.


Preview of the Data Model  

Click on the link below to obtain an image of the proposed Data Model, designed to better accommodate the complexity of the stem cell transplantation and cell therapy fields.  
​​​      EBMTLogicalERDRevised20140728.png

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