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Helpdesk

Contact the Registry Helpdesk with any questions, comments or problems regarding the Registry: data submission, use of ProMISe, clinical content, manuals, training, etc.

 

You can browse through DATA MANAGEMENT NEWS to see the issues we have been discussing

 

For any enquiries regarding JACIE, please contact JACIE Accreditation Office

 
 
June 2017
EBMT 2017 Marseille
 
Speakers slides & recordings.
The material is available for personal use only. Commercial use by companies is explicitly excluded. 
 
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Car T-Cells     Atillio Bondanza

Centre Presentation: New MED-A and working practice

Centre Presentation on how new Med-A form has affected working practices in centres.mp4mp4

​Massimo Berger
Chronic GvHD Fiona Dignan

Cytogenetics with focus on MED-A

Cytogenetics (with a focus on Med-A).mp4mp4

Jordi Esteve

​Data Protection

Data Protection.mp4mp4

Jeroen Knijpenga

How to document complicated patient histories

How to document complicated patient histories.mp4mp4

Asuncion Brager

Immunosuppressive treatments in

Aplastic Anaemia: RACE trial update

Regis Peffault de la Tour & Antonio Risitano

How is HLA data in the Registry used?

How is HLA data in the registry database being used by EBMT.mp4mp4

Johannes Schetelig
​Long term survivors Monika Sztankay
​MED-A Discussion forumPeter Dreger, Sebastian Giebel,  Johannes Schetelig, Hildegard Greinix

 

December 2016

Donor Registries - Issuing Organisation Number (ION)

Most donor registries have been given a universally unique 4 digit number -the  ION.
 
The BMDW codes (unique codes representing the Donor Registries) are being replaced with the ION and this number can be found in ProMISe. The WMDA list is available on: https://share.wmda.info/display/WMDAREG/Database.
 
This list also contains some, but not all, the Cord Blood banks. Please enter this number in the form. See list for the conversion table from the BMDW code to the ION:   Old Acute Leukaemia transformed from MDS or MDS.pdfION list
 
 
  ProMISe
On 7 November 2016, ProMISe was upgraded to version 4
 
The main feature of ProMISe 4 will be to prepare it to become compatible with other browsers during 2017 (e.g. Chrome, Firefox) in addition to Internet Explorer.
 

See document below for an explanation of the changes.

 Old Acute Leukaemia transformed from MDS or MDS.pdfRelease notes ProMISe Nov 2016

 
Internet Explorer versions
 
We have been notifying users who are still on IE8 to try to get their browser upgraded urgently. Support is already limited for IE8 and by the end of this year it will become obsolete. Users should upgrade to at least IE9 but preferably IE11.
 
 

 

AML navigation changes (30th August,2016)

See document below for an explanation to the navigation changes implemented in ProMISe to the AML

Old Acute Leukaemia transformed from MDS or MDS.pdfOld AML transformed from MDS or MDS_MPN. Old Secondary AML. Changes to navigation.

 
 
 

WHO Lymphoma Classification -Actualisation of the labelset in the EBMT Registry  

See Lymphoma labelsets document for a key to the old and new label

sets.

 
 
 
EBMT 2016 Valencia

REPORTof feedback forms _ DM Sessions Valencia_2016_final draft.pdfFeedback report

 Speakers slides
 
Cell therapy for Allografts​ Chiara Bonini
Conditioning ​Hermann Einseler
Inherited Disorders ​Andrew Gennery
​JACIE - the process explained ​Eoin McGrath
​Optimising data collection - Centre presentation ​Camilla Roepstorff & Heidi Petersen
​Burning issues re AML/MDS classification ​Jordi Esteve
​Co-morbidity index ​Roberto Raimondi
Multiple myeloma: evaluating response ​Laurent Garderet
 
  
 
 
 

 

 
 
 

Data cleaning

 

Duplicate Registrations: How to avoid them: We strongly recommend that you read this document before entering any data into ProMIse

.

June 2014: TIDY UP YOUR DATA: INSTRUCTIONS 

 
 
 
 
 
 
 

 

 

 News

 
10/07/2017
Creation of a new&#160;EBMT Legal &amp; Regulatory Affairs Committee (LRAC)... Read more >>
21/06/2017
June 2017 | Vol. 57 - Issue 3&#160;... Read more >>
17/05/2017
The EBMT implements Elsevier’s MACRO platform to upgrade patient registry.... Read more >>
05/10/2016
​EBMT TV returns to 2017 Annual Meeting... Read more >>
26/09/2016
​The EBMT has contributed to the Innovative Medicines Intiative... Read more >>
10/05/2016
​More than 60 EBMT centres have already started entering their related donor data. We want to invite... Read more >>
 

 Events

 
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