Issue Nº4 / 2006


EBMT Website Bulletin


Dear EBMT Member,

I have the pleasure of sending you the September 2006 edition of the EBMT Website Bulletin detailing changes, modifications and updates on the EBMT website. You will also find information on forthcoming meetings which may be of interest to you.

Should you have any trouble accessing any of the documents, or should you have forgotten your password, please do not hesitate to drop me an email and I will be happy to help.

 Stephen Jones
EBMT Secretariat
admin@ebmt.org


 





 

 


 

 

 

 

 

 

 





Working Parties
Aplastic Anaemia Working Party (AAWP)
 


The following publications have been added to the AAWP Publications list where you will also find direct links to PubMed.:

i)¨Influence of Donor/Recipient Sex Matching on Outcome of Allogeneic Hematopoietic Stem Cell Transplantation for Aplastic Anemia¨

ii)¨Fludarabine, Cyclophosphamide And Anti-Thymocyte Globulin (Atg) For Alternative Donor Transplants In Acquired Aplastic Anemia (Saa): A Report From The Ebmt-Saa Working Party¨

The AAWP will also be holding:

A JOINT MEETING WITH THE LATE EFFECTS WORKING PARTY (LEWP)
on 9TH & 10TH NOVEMBER 2006 IN GENEVA, SWITZERLAND.
Locally organised by Jakob Passweg

Click here to view the programme

Get more info click here
. Working Parties
Chronic Leukaemia Working Party (CLWP)
 

The following documents have been updated on the MMVAR Trial:

-Protocol
-Complete Report Form
-Patient Information Leaflet

The neurotoxicity questionnaire has also been added in Swedish.

Get more info click here
. Working Parties
Inborn Errors Working Party (IEWP)
 


The following articles have been published on behalf of the the IEWP and have been added to the IEWP Publications list:

i)¨Haematopoietic stem cell transplantation for primary immunodeficiencies, a 10-year single-centre experience.¨

ii)¨Impact of high-resolution matching in allogeneic-unrelated donor stem cell transplantation in Switzerland.¨

iii)¨Characterization of 17 new cases of X-linked chronic granulomatous disease with seven novel mutations in the CYBB gene.¨

iv)¨Transient hemophagocytosis with deficient cellular cytotoxicity, monoclonal immunoglobulin M gammopathy, increased T-cell numbers, and hypomorphic NEMO mutation.¨

v)¨Hematopoietic stem cell transplantation in hemophagocytic lymphohistiocytosis (HLH): a single center report of 48 patients.¨

Get more info click here
.Working Parties
Late Effects Working Party (LEWP)
 


Two Special Reports have been added to the guidelines section of the LEWP web pages.

-¨Recommended screening and preventive practices for long-term survivors after hematopoietic cell transplantation:joint recommendations of the European Group for Blood and Marrow Transplantation,Center for International Blood and Marrow Transplant Research,and the American Society for Blood and Marrow Transplantation¨

Get more info click here
.Working Parties
Lymphoma Working Party (LWP)
 


The LWP have added a number of new documents to the studies section of their web pages.

Protocol for 'Allogeneic Peripheral Blood Progenitor Cell Transplantation After Reduced Conditioning for Primary Refractory or Relapsed Hodgkin's Disease' (A.Sureda, N.Schmitz)

Synopsis for 'Autologous transplantation for non Hodgkin's lymphoma in HIV+ patients: A matched-paired analysis with HIV negative patients' from Dr. Diaz

Synopsis 'Autologous transplantation followed by reduced-intensity allogeneic stem cell transplantation in patients with Hodgkin's lymphoma' from I. Alvarez

*please note these documents are password protected. For password enquiries please contact the EBMT Secretariat*

  

 
Get more info click here
Top
. Subcommittees
EBMT Statistical Sub-committee
 


The Statistical Sub-committee is pleased to add Anna Santucci and Carmen Canals to their list of members.

A member's photo gallery has also been created to put some faces to the names.

They have also added the Results to their survey entitled "What would you need from the statistical sub committee?" to their webpage which was sent to all members following the Hamburg meeting.

  
Get more info click here
Top
. Subcommittees
EBMT Education Sub-committee
 


The Education Subcommitte has updated its members list adding all members and email contact details.

 

You will can also order the ´The 2004 revised edition of the ESH-EBMT Handbook on Haemopoietic Stem Cell Transplantations´ free-of-charge from a direct link on the subcommittee´s page.
Get more info click here
Top
. Subcommittees
EBMT Quality Assessment of Autografts Committee
 


The committee have updated their list of members with the addition of subcommittee members and their email addresses

They have also added a new page entitled studies which contains information on their most recent CD34 study: -¨Quality Assessment of Autologous Haematopoietic Blood Progenitors and Stem Cell Grafting: A Prospective Registration Study.¨

 

 
Get more info click here
Top
. EBMT Nurses Group
Donor Infomation Booklet On Stem Cell Transplant
 

The EBMT Nurses Group are proud to present their Donor Information Booklet Stem Cell Transplant which is now available in EIGHT languages, courtesy of the Dutch National Nurses Group. They were bestowed this gift from a former patient who ran his own translation agency and wanted the information he himself had found useful to be widely available to speakers of other languages. The booklets may be downloaded in PDF format from the Education Section of the Nurses Group webpages under educational projects.
Get more info click here
. Forthcoming Meetings
Dates for your diary
 

A number of important meetings have recently been added to the Related Meetings & Workshops section of the website. We would like to bring to your attention the following events:

Lymphoma Working Party Second Educational Course
- Full Scholarships Available -
-*Application Deadline 25th September 2006*-
Date: 9th-10th November 2006
Location: Prague

View the preliminary programme here.

9th Infectious Diseases Working Party Training Course
´Diagnosis and Strategies for management of infectious complications after stem cell transplantation´
Date: 13th - 14th October 2006
Location: Dublin For further information see here

The 11th ICDT conference on Innovative Therapeutics in Oncology
Date: 4th- 8th November 2006
Location: Versailles, France

Click here http://www.icdt2006.org for access to
- Scientific program
- Call for abstracts
- Registration forms
- Accommodation form
- Reduced rates conditions


European Society of Gene Therapy 14th ESGT Annual Congress
Date: 9th-12th November 2006
Location: Athens For more information see here

The American Society of Haematology 48th Annual Meeting and Exposition
Date: 9th-12th December 2006
Location: Orlando, Florida

See here for programme

For a full list of Meetings click here