Issue Nº1 / 2007


EBMT Website Bulletin 1st Quarter 2007


Dear EBMT Member,

We hope that you have already made a fine start to 2007!

I have the pleasure of sending you this year´s first edition of the EBMT Website Bulletin detailing changes, modifications and updates on the EBMT website. You will also find information on forthcoming meetings which may be of interest to you.

Should you have any trouble accessing any of the documents, or if you have forgotten your password, please do not hesitate to send me an email.

We look forward to meeting you in Lyon!

 Stephen Jones
EBMT Secretariat
admin@ebmt.org

 

Working Party - Aplastic Anaemia
Working Party-Autoimmune Diseases
Committees - Statistical & Nuclear Accident
Registry - Activity Survey
 





 

 


 

 

 

 

 

 






 

 

 



. Working Parties
Lymphoma Working Party (LWP)
 


The LWP have updated the Studies Section of their web-pages with the addition of the following New Study Proposals that were approved at the LWP General Meeting in Prague last November:

i)¨Reduced intensity allogeneic haematopoietic stem cell transplantation for follicular lymphoma using different approaches for GVHD prophylaxis¨ J.Delgado

ii)¨A retrospective comparison of reduced intensity allogeneic stem cell transplantation from a matched sibling versus a matched unrelated donor in follicular lymphoma.¨ A. Ivivi

iii)¨Autologous stem cell transplantation in elderly patients (> 60 years) diagnosed of non-Hodgkin's lymphomas.¨ E. Jantunen

iv)¨High dose therapy and autologous stem cell transplantation for relapsed aggressive lymphoma patients: A study taking the patients as its own control.¨ C.Gisselbrecht / N. Mounier

v)¨A study of the relative survival analysis of diffuse large B-cell lymphoma patients after front-line autologous stem cell transplantation.¨ C.Gisselbrecht / N. Mounier

For more information on these studies please contact the Working Party Chair

The LWP have also added the following slides to their web-pages that were presented at the ASH meeting in December 2006:

¨Matched Unrelated Donor Stem Cell Transplantation for Patients with Diffuse Large Cell B Cell Lymphoma: A Retrospective Analysis of 118 Patients Registered through the European Group for Blood and Marrow Transplantation (EBMT).´

´Matched Unrelated Donor Stem Cell Transplantation for Relapsed or Refractory Mantle Cell Lymphoma. A Retrospective Analysis from the EBMT Lymphoma Working Party.´

´Autologous stem cell transplantation followed by reduced intensity allogeneic stem cell transplantation (tandem transplantation) as treatment for advanced resistant Hodgkin´s Lymphoma patients. A retrospective analysis of the Lymphoma Working Party (LWP) of the european group for blood and marrow transplantation (EBMT).´

´Autologous Stem Cell Transplantation in HIV Associated Lymphoma Patients: The EBMT Lymphoma Working Party Experience.´


The minutes from the Lymphoma Working Party General Meeting in Prague in November 2006 are now also available to members along with a document outlining the process of organising the LWP Educational Courses.

General Meeting Minutes

Educational Course Guidelines

 

*please note these documents are password protected. For password enquiries please contact the EBMT Secretariat*

 

  
To visit the LWP web-pages click here
. Working Parties
Paediatric Diseases Working Party (PDWP)
 


The PDWP have added the following documents to the studies section of their web-pages

i)¨HSCT for Autoimmune Diseases in Children.¨

ii)¨HSCT activity - Eastern Europe 1985-2005.¨

The PDWP have also created a web-site to promote the very first PDWP Training course that will take place 6th-9th June in Genoa. Click here for more details.


*please note some of these documents are password protected. For password enquiries please contact the EBMT Secretariat*

See PDWP Web-pages click here
.. Working Parties
Aplastic Anaemia Working Party (AAWP) / Late Effects Working Party
 


Following a successful meeting in Geneva in collaboration with the Late Effects Working Party (LEWP), the AAWP have now published the minutes.

*please note these documents are password protected. For password enquiries please contact the EBMT Secretariat*


See AAWP Web-pages click here
. Working Parties
Autoimmune Diseases Working Party (ADWP)
 


The ADWP have updated their web-pages and have included a brand new newsletter which the ADWP has decided to publish quarterly to keep members informed of the Working Party´s activities.

The ADWP have also updated the status of their studies, their meetings and their Data collection web-page sections.


*please note these documents are password protected. For password enquiries please contact the EBMT Secretariat*

 

Get more info on EBMT Working Parties click here
. Committees
Nuclear Accident Committee & Statisical Committee
 

What would you need from the Statistical Committee?¨

The Statistical Committee would like to thank everybody who kindly took the time to participate.

The committee has also posted the minutes from their most recent meeting in Paris:

Minutes, Paris Meeting 2006

They have also updated their list of members and have made additions to their gallery of members accordingly.



*please note these documents are password protected. For password enquiries please contact the EBMT Secretariat*

 

For more info about all EBMT Committees click here
Registry
Activity Survey
 

 

If your centre has not already submitted the EBMT Activity Survey for 2006, you are now invited to do so:

To find out more or to take part in the survey, please click here

The data reported to the EBMT Med AB database ¨ProMISe¨ is not automatically included in the Activity Survey. Even if you report your transplant data to the EBMT, by paper Med A form, electronically with the ProMISe system, or via a National Registry, please report to this survey too.

The 2005 Activity Survey data has now been compiled. The following slides have been released and can be downloaded from the EBMT website:

Transplant Activity Survey 2005 Overview of HSCT in Europe 2005

The following publication has also been updated:

*please note these documents are password protected. For password enquiries please contact the EBMT Secretariat*

 

 

  
To participate in the 2006 Activity Survey click here
Top
. Outreach
Outreach Exchange Board
 



The Outreach Committee is proud to announce the imminent launch of the Outreach Exchange Board.

We need your help to collect advertisments for the Exchange Board. Please download the advertisment template form here and send it back to the EBMT Secretariat.

We hope that this will be the start of an extremely rewarding and enriching project that will help harmonise BMT standards and practice across Europe and beyond!

Please click here to find out more
Get more info on Outreach click here
. EBMT Nurses Group
National Affiliated Groups
     

Under the National Affiliated Groups sections of the EBMT Nurses Group web-pages there have been a quite few changes over the last few months:

The Swiss National Group have seen changes to the posts of Chairperson and Vice- Chair:

Chair: Christel Pino Molina

Vice-Chair: Natalie Imboden

The group have also included this document:

The 'Terms of Reference' of the Swiss National Group

 

The German National Group had their board elections and are pleased to announce changes a new Chairpeson and new members:

Chair: Micaela Schneider (Munich)

New Members:

Ralf Schmacher (Oldenburg)
Anke Körner (Berlin)
Edda Stöbener (Kassel)

  

The Middle-European Group webpage has been updated and now contains the following new documentation:

Middle European Group Constitution

They have also added a list of Cooperating centres from the countries that this National Group covers.
Visit the Nurses Group Web-pages click here
. Retrospective Studies & Clinical Trials
Close of Clinical Trial
 


The Clinical Trials & Study Office in Leiden would like to inform all members of the closure of the following trial:

¨CML relapse (DLI vs. Imatinib) Study¨

At a recent meeting of the CLWP committee chairs, it was decided that the EBMT will be closing the CML relapse (DLI vs. Imatinib) study. It was mainly due to the current climate of using Glivec for relapse after allografting in CML and the lack of financial support that would make the running of a randomised clinical trial very difficult.

Cesare Guglielmi would like to thank you all for your cooperation. As the Leiden office does not exactly know which hospitals already have submitted this protocol to their ethical committees and/or their national competent authority we would like you to notify them yourselves.

In case of any questions or comments, please contact Alain Barrois

 
Know who to contact about Retrospective Studies click here
. Clinical Trials Web-pages
Updates
 


Clinical Trials have made updates to their introductory webpage and have added the following documents and links which may be of interest to members:

¨EBMT Policy on Independent Data Monitoring Committees.¨

The Inventory and Evaluation of Clinical Research Networks (IECRN)
Go to the Clinical Trials web-page click here
. Public Review
Cellular Therapy Coding & Labelling Standards
 


Important new labelling standards have been developed that will affect Cellular Therapy Facilities and they are now available for public comment. Further information is available at:

www.iccbba.org/ctcomments.html

Comment period closes on 28th February 2007

. Ops Manual
EBMT Annual Meeting Section

Ever thought about putting in a bid for the EBMT Annual Meeting?

Always wanted to know how?

Over the course of 2006 the Board spent a considerable amount of time reviewing and updating the Rules & Regulations for organising a standardised annual meeting and has produced an updated version summarising current procedures. This document will be revised on an annual basis, following the evaluation of the previous meeting. A new Venue Bid Manual has also been produced to guide members interested in submitting a bid to host a future annual meeting.

The manual aims to provide a comprehensive overview of the selection procedure, eligibility & evaluation criteria, the meeting requirements and specification of the contents of the bid document, to ensure a fair and transparent process for selecting venues.

A call for bids for EBMT 2010 will be officially announced at the EBMT 2007 meeting in Lyon, but anyone interested in submitting a bid is welcome to proceed with an 'Expression of Interest to Bid' at your earliest convenience (deadline 1st May 2007).

If you have any question or comments on the contents of the manual do not hesitate to contact: fiona.mcdonald@ebmt.org

EBMT Venue Bid Manual

Please click here to visit the 2007 Annual Meeting Web-site

View the EBMT Operational Manual info click here
. Important Dates
Dates for your diary!


Please find below a list of forthcoming events that we would like to highlight for you:

15th February 2007

¨Deadline for applications for the 2007 EBMT AMGEN Clinical Fellowship Awards¨.

To apply and find out more, click here.

21st February 2007

¨British Bone Marrow Registry Scientific Day¨

Please contact Anne Baxter if you require any further information.

28th February 2007

¨EBMT Annual Meeting 2007¨

Deadline for intermediate registration fees & Deadline for hotel reservations

25th-28th March 2007

¨EBMT Annual Meeting 2007¨


2nd – 4th March 2007

¨ESH-EHA ANNUAL DIAGNOSTIC WORK-UP Focus on LYMPHOID Malignancies¨Rome, Italy

To register click here or go directly to the conference website



  • Deadline for Pre-Inscription to the ¨EBMT Patient & Family Day¨ 23rd February 2007. Click here to register.

 

25th-29th April 2007

ESH-EBMT Training Course:¨Haematopoietic Stem Cell Transplantation¨ Alicante, Spain

 

15th & 16th November 2007

¨Lymphoma Working Party 3rd Educational Course¨

  • This year´s course will take place in Hamburg, DE and is being locally organised by Prof. Norbert Schmitz. The programme will be released shortly.
See all forthcoming meetings click here