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EBMT CLWP and LWP survey on the outcome of autologous and allogeneic stem cell transplantation for Richters transformation

The CLL subcommittee of the Chronic Leukemia Working Party is conducting a survey to identify patients with Richter's transformation. Currently these patients are not clearly registered in the EBMT database. We hope that your participation in collecting data for this small but very interesting patient's group will help to provide further data concerning a retrospective survey regarding patients transplanted from 1997 to 2006.

To download a pdf version of the survey, click here

Data will be collected through a pre filled MedB form, click here

Additional Information can be found in the study invitation letter, click here

The survey should be completed and sent to the address below or to the following fax numbers +49 180 500 290 623/+49 711 4900 8723 before 30th November, 2007

Data Office
Chronic Leukaemia Working Party
Department of Medical Statistics & Bioinformatica
Postzone S-05-P LUMC, PO Box 9600
2300 RC Leiden, The Netherlands
e-mail: clwpebmt@LUMC.NL

Transplants with non myeloablative conditioning regimens for myeloid metaplasia with myelofibrosis (MMM)

The number of reports on the use of non myeloablative conditioning regimens in different diseases is rapidly increasing. There have been few reports on the use of non myeloablative conditioning regimens for myeloid metaplasia with myelofibrosis (MMM). Since this seems to be a very interesting indication, the MDS Subcommittee of the Chronic Leukemia Working Party of the EBMT is interested in collecting data on non myeloablative transplants in this rare disease.

A short questionnaire on non myeloablative conditioning regimens for myeloid metaplasia with myelofibrosis (Primary MMM, post-Polycythemia Vera or post-Essential Thrombocythemia) can be downloaded below:

Questionnaire

Please return the completed questionnaire by fax: 49-511-532-9662 or mail: hertenstein.bernd@mh-hannover.de

Please do also respond if you did not perform non myeloablative transplants in these patients.

We highly appreciate your participation.

Bernd Hertenstein
BMT Unit
Hannover Medical School

Philippe Guardiola
Saint Louis Hospital
Paris

Theo de Witte
Dept. of Hematology Nijmegen


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