Background

In 1990, the EBMT introduced an annual survey to prospectively collect numbers of patients treated with a haematopoetic stem cell transplant according to indication, donor type and stem cell source. Its importance was immediately realised and since then, the survey has become an instrumental tool for assessing the real picture of HSCT in Europe, recognising trends, illustrating the current status and providing essential data for counselling and planning. This survey is relevant to health care agencies, industries as well as patients. In addition, it serves as a quality control instrument for comparison with national agencies or for the EBMT auditing process.

All transplant teams are invited to join the survey: for EBMT members it is a mandatory process, for non-members it is voluntary.

Participate in the Activity Survey 2009

Participate in the 2009 Activity Survey. Note that the Med A data reported to the EBMT Med AB database -Promise- is not automatically included in the Activity Survey. Even if you report your transplant data to the EBMT, by paper Med A form, electronically with the ProMISe system or via a National Registry, please report to this survey too.

• EBMT Calendar Year Survey 2009 download in either excel pdf
• Guidelines for Activity Survey 2009
• Letter requesting participation in Activity Survey 2009
• Reduced Intensity Conditioning Document
• Disease Classification Document

Instructions:

1. Click on the link 'EBMT Calendar Year Survey 2009'
2. Save the file to your Desktop or another easy to remember location.
3. Name the file "CIC (your number)". If you do not have a CIC number, call the file after your institution.
4. Complete the data fields.
5. Email the form to the survey coordinator at baldomeroh@uhbs.ch.
The 2009 calendar year survey may be accessed by clicking on the link above. We recommend that you read the guidelines carefully before filling out the survey.


Guidelines for reporting data to the EBMT Activity Survey 2009.

Table 1: Report the total number of patients receiving their 1st transplant in your centre in 2009. Report the first allogeneic transplant and/or first autologous transplant per patient according to disease indication, donor type and stem cell source as outlined in Table 1. You may include the same patient twice as long as the first occurrence of each type of transplant took place in 2009.

The following EBMT/JACIE/FACT definitions for ‘first transplants’ apply:

The column ‘total allo after auto’ refers to patients with their disease treatment in a planned ‘allo after auto’ transplant programme. Enter these patients in both the respective allogeneic or autologous transplant section in the main table and in the column ‘total allo after auto’ on the right side.

The following definitions for donor type and stem cell source apply:

 For combinations of stem cell products / donor types:

Table 2 and Table 3: Report the total number of retransplants and additional (non-first) transplants performed with allogeneic (table 2) or autologous (table 3) BM, PBSC or Cord blood in 2009

The following definitions for table 2 and 3 apply only if the rules for 1st transplants do not apply:

Table 4: collects generic information (i.e. total numbers only) on additional cellular therapies or technologies.

Please note that in 2008 the EBMT started a second survey for the collection of information on cell transplants with non-hematopoietic cells and /or hematopoietic cells for non-hematopoietic use.

The separate Cellular Therapy activity survey is enclosed. If you have performed such transplants, report them on this survey sheet, if not please return the survey with ‘Zero’ written across it. If you know of departments within your centre performing such transplants, please contact your colleagues and coordinate the Cellular Therapy survey with them.

Table 5: To calculate the total number of transplants in 2009: add together the total number of allogeneic transplants from Table 1 + Table 2 = Total allo HSCT and the total number of autologous transplants from Table 1 + Table 3 = Total auto HSCT to provide the total number of ALL TRANPLANTS performed in 2009.

Disease classification dictionary: the classification of diseases for the survey follows the EBMT disease classification dictionary, which can be found at: www.ebmt.org - Registry - Transplant Activity survey – Alphabetical list of Disease Classifications.

Please note that reporting to the activity survey does not substitute for sending the MED-A data to the EBMT registry.

Please send back both the EBMT activity survey and the Cellular Therapy activity survey to:

Helen Baldomero,
Hematology,
University Hospital Basel,
Petersgraben 4, CH 4031,
Basel, Switzerland
E mail: baldomeroh@uhbs.ch
tel: 00 41 61 265 3203, FAX: 00 41 61 265 2735.       

Do not hesitate to contact me if you have any questions.

Summary Slides

Data from the most recent survey year are available only to EBMT members using their username and password. Please contact the EBMT secretariat with any password queries or difficulties.

Transplant Activity Survey 2008

Overview of HSCT in Europe 2008

Transplant Activity Survey 2007

Overview of HSCT in Europe 2007

Transplant Activity Survey 2006

Overview of HSCT in Europe 2006


Transplant Activity Survey 2005

Overview of HSCT in Europe 2005


Transplant Activity Survey 2004

Overview of HSCT in Europe 2004

Please note that this data has not yet been published and should be treated as confidential. It is for internal use only and may not be used for publication without obtaining prior consent from Prof. Alois Gratwohl, Head of the survey.

Please contact Helen Baldomero should you have any questions regarding the Activity survey. Tel: +41 61 2653203 baldomeroh@uhbs.ch.

Previous years

• Activity survey archive (open access)

Publication

Please contact Helen Baldomero for PDF versions of the following manuscripts based on the activity survey: hbaldomero@uhbs.ch

Contact Details